Losh update – 1 year post trach decannulation

Losh update – 1 year post trach decannulation

Approximately one year ago Losh got his trach out. I wanted to give a little post trach decannulation update:

Trach Decannulation Day – June 4th, 2014

The doctor assured us that within a few months the hole would close, and if it hadn’t closed near the 1 year mark that they would discuss surgically closing it..

Immediately post trach decannulation

ENT continued to monitor the stoma and by the six month mark, his hole was still ever so slightly open, but the Dr. decided to go ahead and discuss surgical closure.

Nearing the one year mark.. Hole still open, but only slightly.

Nearing the one year mark.. Hole still open, but only slightly.

Because he was already scheduled for a surgery at the end of April, ENT decided just to tag along with that surgery and close it then.

So, on the 28th of April, Losh had his stoma surgically closed.

In Pre-op waiting for surgery...

In Pre-op waiting for surgery…

In recovery (Click the image to see the VLOG on youtube)

In recovery (Click the image to see the VLOG on youtube)

You can click the image to view the vlog. It goes into a little more detail, but surgery went well. He had some oral work done (sealants, crowns, and a root canal), bronchoscopy, and stoma closure. Recovery didn’t go as well. He was upset because he woke with a bad taste in his mouth and he wanted me. He kept dropping his sats and needed to be put on oxygen. They kept him on it overnight along with an apnea monitor. In the morning, they downloaded the results, took him off of the oxygen (which he kept placing on top of his nose anyway) and told us we could go home!

He is almost 2 weeks post-op and doing really well. There have been no complications. The site is healing up nicely. In a few more weeks he will just be another kid in a wheelchair instead of a “trach kid”.

That is an awesome feeling!

45 thoughts on “Losh update – 1 year post trach decannulation

  1. aimee fauci

    What an amazing storm trooper! I am always amazed at what our kid’s body’s can handle and how they mentally do better than we do.

  2. Robin Rue (@massholemommy)

    Awww, so happy to hear he is doing well and that there were no complications. I am happy for your family!

  3. Ashley B.

    I am glad to hear the surgery went well! I know it’s tough when kids have to go through that, for both the child and the parents.

  4. Kimberly Grabinski

    I’m impressed that he has gone through this ordeal and still looks like he’s smiling. I’m glad to hear that the surgery went well and he’s doing better.

  5. Amanda

    So glad to hear that things are going well for your adorable little man. It is great to know that he will be a regular wheelchair kid soon. Happy Mother’s Day!

  6. Amanda Love

    That is truly awesome that he’s doing well. Happy to hear it and he looks like he’s such a happy little guy too. Here’s hoping that no complications arise.

  7. chanelle

    I’m so glad your little one is doing well. My husband just so happened to have surgery today too, altho not on his throat. I can really appreciate a healthy recovery. Happy Mother’s Day!

  8. Jeanine

    I’m so glad he’s doing well! What a trooper! So glad he’s healing well. Hes so sweet!

    1. LifeAsAConvert Post author

      He has had over 30 procedures done and has only had a bad time with anesthesia less than a handful of times. So, generally he handles anesthesia well. I think for me, that is the scariest part.

  9. Pam

    Congratulations to the little one. What an ordeal to go through for both him and you but now it is behind you. I bet he is quite happy to be able to not have to worry about his trach anymore.

  10. Ann Bacciaglia

    I am so happy to hear how well he is doing. He looks amazing. I hope you have a great summer.

  11. Sharon

    I am so glad he’s doing better with his trach hole closing. I went to school with a girl who had one for years, and since this was in the early 80’s, they waited forever to see if her hole would close and it never did, so she was horribly teased until they finally were able to close it for her. One of the sweetest girls I ever knew :)

    1. LifeAsAConvert Post author

      That stinks that she was teased. My son did get a lot of questioning stares and questions from little kids who were quite amazed/frightened that he had a hole in his neck. Thankfully he was never teased.

  12. Lisa Bristol

    What an amazing and strong little guy. I am so happy to hear he is doing well.

  13. Lisa Rios

    What a brave boy he is! I am glad that his surgery went well. I am really impressed that he has gone through this ordeal and still he looks strong with a cute smile. Really he is a great inspiration for many.

  14. Rosey

    I’m glad to hear he’s healing up nicely now. Hurrah that the stoma is closed and he’s home. :)

  15. Chrissy Mazzocchi

    He is such a sweetie pie and so brave! I hope you are having a Happy Mother’s Day with him <3

  16. Bonnie @ wemake7

    I’m so happy to hear that everything went well and he’s doing good. Thanks for sharing your personal story.

  17. Babita

    Losh is a brave boy. I am glad to know his trach closure surgery went well and he is recovering. He is a strong guy.

  18. Gabriel

    Looks like he’s learning perseverance early – it’s a great thing for a kid to learn, just wish he had better circumstances for it. Still, looks like he’s soldiering through it.

  19. Megan @ C'mon Get Crafty

    What a strong and sweet little guy! Many many prayers for continued health and happiness!

  20. Fi Ní Neachtáin

    What an absolute sweetheart Losh is and such a brave little guy too. My prayers are with him and with you, you’re such a strong mama and thanks for sharing his story.

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